This week I spoke in Westminster Hall to open a debate on Prescription Charges for people Aged 60 or Over.
You can read the transcript and watch my full contribution below.
I beg to move,
That this House has considered e-petition 594390, relating to prescription charges for people aged 60 or over.
It is an honour to serve under your chairship, Sir Edward. The petition I am presenting touches on a number of incredibly important issues in healthcare from access to treatment to public health and preventative care, all within the context of how the NHS adapts to an ageing population. Although the petition focuses on prescription charges, it must be considered in the broader economic context of the cost of living crisis, with months of rising prices and inflation where even the most basic necessities are becoming luxury items for many.
The steady rise of pensioner poverty since 2015 shows no sign of stopping, continuing a trajectory that will see millions of us face a retirement dominated by debt and hardship. That context means we are duty-bound to look beyond figures on spreadsheets and examine what the proposed scrapping of free prescriptions for that age group would mean for those who would be impacted by it. It is those impacts that the petition creator Peter had in mind when he set it up.
When I spoke to Peter about why he started the petition, he shared his concern about the impact these changes would have not on him, but on his local community—the men and women who are already struggling with costs and are making difficult choices about what to prioritise. It is people like him who have spent a lifetime working in industry and those who, because of that work, now suffer from a variety of medical conditions, each needing different medications. It is those women, including his wife, who had their lives upended by the callous way the Government implemented the equalising of the state pension age. WASPI—Women Against State Pension Inequality Campaign—women, who were born in the 1950s and live in England, have further issues to deal with compared with those in devolved countries.
INTERVENTION FROM MARGARET FERRIER MP
Uprating the age when prescriptions become free in England to be in line with the state pension age, as the Government consulted on, would be harmful given the cost of living crisis, as the hon. Lady said, and the growing economic activity in those over 50 for various reasons, including their health. Does she share my concern about what this could mean for ease of access to medical treatment for the older generation?
TONIA ANTONIAZZI MP RESUMES
I thank the hon. Lady for her contribution. It is, indeed, a huge concern that people with multiple health problems are facing extra difficulties in accessing prescriptions and are having to make those difficult choices about how they spend their money.
For Peter, it seems that something has gone incredibly wrong to get us to this point—something broader than this planned introduction of charges, but something encapsulated by it. It is the breaking of a promise—the promise between citizen and state and the promise that a lifetime of contribution, whether financial through tax and national insurance or through the unpaid labour of care that enables our economy to function, means support in retirement. Peter kept his part of the bargain. It was great to have a conversation with him. He could not believe that his petition was being debated in this place, and it is so important that his voice and the voices of others are heard in this place. He kept his part of the bargain, first in the shipyards on the Tyne and then working on aircraft. He paid in and did what was expected, as did hundreds of thousands of others, but the Government have not held up their end of the bargain. They have changed the rules, and it looks like they will do so again. That unfairness is the reason why we are discussing the matter today.
The plan to introduce charges seems particularly unfair when Peter does not even have to look that far from home to see a better way. England is the only nation in the United Kingdom without free prescriptions and, as colleagues may have guessed from my accent, I am Welsh. I have the great pleasure of representing Gower, one of the three Swansea constituencies, which is beautiful. If anyone ever wants to visit, please do.
Swansea and Newcastle have a lot in common: both are port cities with a proud industrial heritage; both are famous for an excellent night out. It seems the height of unfairness to many in Newcastle and across England that they alone in the United Kingdom pay for prescriptions. I am sure that the Government will tell us that several conditions are exempt and that pre-payment certificates cut costs, but, as I said earlier, we must look beyond the briefings to the reality of the system actually. The exemptions list is not only woefully out of date but, apart from the addition of cancer in 2009, it has not been reviewed since 1968. It also does not cover several life-changing conditions, such as Parkinson’s, arthritis, asthma, Crohn’s disease, cystic fibrosis, lupus or motor neurone disease.
That is the tip of the iceberg. People with those conditions, and other complex, lifelong conditions, still pay for their prescriptions. For those with multiple, co-existing conditions, the cost is even higher. Evidence from the Prescription Charges Coalition, a group of 50 organisations calling on the Government to scrap prescription charges for people with long-term conditions in England, shows that people with long-term conditions struggle to pay for their medication. A third of respondents in England with long-term conditions reported that they had not collected a prescription item due to the cost. Nearly a third admitted that they are skipping or reducing medication doses, with cost concerns a key factor for more than four out of 10. As a direct result of reducing or skipping medications, nearly three in five—59%—became more ill, and 34% needed to visit their GP or hospital. In fact, the Government’s own impact assessment on the introduction of charges highlighted that issue and noted the potential effect on people’s health.
In 2018, thousands of over-the-counter medicines were taken off the list of those that GPs are able to prescribe, leaving those with long-term conditions facing additional costs for their conditions and to stay well. Those worrying health outcomes come with a cost to the NHS. Several member organisations of the PCC conducted research last year. They found that, of those surveyed, one in six of those with asthma and lung disease had cut back on using their potentially life-saving inhalers, as they were worried about the cost; 29% of respondents with cystic fibrosis reported that they had skipped their medication due to prescription charges; and one in five people with multiple sclerosis say that they do not have enough money to pay for the medication or treatment they need.
One lady who lives with kidney disease was hospitalised twice because she had to wait until payday to collect a prescription. In hospital, she had to have a lumbar puncture and an MRI scan, which cost the NHS thousands of pounds more than the prescription would have. As colleagues can see, the impact is vast and, when meeting campaigners prior to this debate, I heard far too many stories like that one. The lived reality of those impacted by this proposed change and the issues caused by the current dysfunctional exemptions system are best understood through that lens.
I work closely with Parkinson’s UK, which is one of the many organisations deeply concerned by this proposal. Medication is the only way to control the symptoms of Parkinson’s disease; most have to take a cocktail of medications to stay well. Research shows that Parkinson’s cost households over £19,000 a year in 2021, due to loss of work; and additional health and social care costs. As Parkinson’s progresses, it becomes more complex. Among people eligible to pay for prescriptions who are aged 60, in any year 5.5% will die within five years and 23.8% will need support to live independently—that is within only five years of being diagnosed. However, they would still have to pay for their essential medications for Parkinson’s.
I want to tell the Chamber a little about Denise. She is 59 and was diagnosed with Parkinson’s in April 2019. She has had to reduce her working hours from 37.5 to only 12 per week, due to her symptoms. She uses a prepayment certificate for her prescriptions, because it is cheaper than purchasing them individually. If the exemption age rises to 66, however, she will have to continue paying for them.
Denise told Parkinson’s UK about the impact that that would have on her:
“I always thought I would work until I was 67, because I would be able to. However, as my Parkinson’s advances I worry about whether I physically will be able to. My employer is really understanding, allowing flexibility to start later in the mornings until my medication has kicked in, but I have already had to reduce my hours by 60% and I’m already noticing the impact of this reduced earning capacity on our household.
I have to pay for my prescriptions, and this is eating into the diminishing amount I can contribute towards the household bills. If they were to increase the age at which I become exempt, it would be really tough because we haven’t allowed for more years of these additional charges.
It feels like the Government is once again penalising those living with a long-term condition like Parkinson’s that anyone could get and for which currently there is no cure.”
Denise’s story is not an isolated one. Parkinson’s is not the only condition whose sufferers will be further disadvantaged by the change, but this is not a problem that will be solved by changing the exemption list. An exemption list has winners and losers baked into its design, and the complexities of managing chronic conditions mean that any approach that is not universal is not fit for purpose.
Furthermore, the Government need to answer why the change is being prioritised now. What evidence is there that it will have any kind of positive impact? We cannot see one. Even if the Government make savings in the short term, the long-term impacts could be catastrophic, leading to greater illness and to more GP and hospital visits.
A poll published in Pulse found that 40% of GPs linked prescription charges to adverse patient outcomes, also indicating that those could lead to far greater costs and more adverse outcomes down the line. Initial results of the 2023 survey by the Prescription Charges Coalition showed that nearly 10% of respondents had not collected medicine due to cost. Of that group—I have more data —30.74% said that they now have other physical health problems, in addition to their original health condition; 30.33% said that they had to go to their GP; 17.32% said that they had to go into hospital for treatment; and 8.32% said that they had to go to A&E.
Research published in 2018 by York Health Economics Consortium highlighted how ending prescription charges for long-term conditions could save money and reduce pressure on the NHS. That comes from preventing avoidable health complications that occur when people do not take their medication. The research identified net savings of more than £20 million per year if the NHS scrapped prescription charges for people with Parkinson’s and inflammatory bowel disease alone. Instead, the Government are discussing introducing additional charges. That flies in the face of common sense.
We know that the NHS is under pressure, but that is the case across the United Kingdom, and the devolved nations are not even discussing removing universal free prescriptions. I urge the Government to follow that lead, to look to the future and not to engage in short-termist, quick fixes that will not be a fix for all, and not for the petition creator.
This week I spoke in Parliament to voice my support for a change in the law which would require sex offenders to inform the police and local authorities if they were to change their name by deed poll.
The law as it currently stands puts the onus for keeping details on the sex offenders register up to date with the offender, rather than with the police and other authorities. This means a sex offender can now change their name and with little difficulty receive a passport or a driving licence with their new name. At no point are the offenders asked if they have a criminal background before being issued with a legal new identity. This practise must end.
You can read the transcript and watch my full contribution below.
My huge thanks go to my hon. Friend the Member for Rotherham (Sarah Champion) for bringing this important subject to the Chamber and to national prominence—her role in this has been extraordinary. I also thank women such as Della who have waived their anonymity to expose the serious failures in the DBS system, and to ensure that the law is changed to keep people safe.
As colleagues will no doubt have seen in their constituencies, most people’s reaction to hearing about this loophole is one of utter disbelief—disbelief that simple changes, such as the deed poll asking if the applicant has a criminal record, have not been made; disbelief that a system that so many of them have encountered—anywhere from their children’s school to local sports clubs—features such a fundamental flaw; and disbelief that, despite years of warning from campaigners, the name change loophole still exists and is treated as an administrative headache, not a serious risk.
I take this opportunity to highlight a concern that the hon. Member for Telford (Lucy Allan) and the hon. and learned Member for Edinburgh South West (Joanna Cherry) have already mentioned. Good intentions have not been balanced with the risk of leaving another avenue to be exploited and that is so dangerous. The DBS grants enhanced privacy rights to individuals who change their gender when changing their identity. Those are exceptional rights that are granted only to individuals from that group. The result is that identity verification is compromised, meaning that there is no guarantee that the information returned during the check and displayed on the certificate will be accurate or complete.
Those exceptional privacy rights also allow an applicant who has changed gender to request that all their previous names are withheld from the DBS certificate that is issued. That right to conceal previous identities is not given to anyone else: disclosing previous identities is a key component of safeguarding, and DBS certificates issued to all other individuals display all other names that the applicant has used.
Applicants who change their gender are also permitted to conceal their sex, and the DBS certificate issued will display their acquired gender instead. That right is not granted to any other individual: the importance of sex to safeguarding means that the sex of all other applicants is always displayed. There cannot be any exceptions in safeguarding. For the system to work, it must apply the same standards to everyone. Sadly, it is simply naive to think that loopholes in the system will not be exploited.
The system relies on the honesty of sex offenders to ensure that it functions as it should, but as the hon. Member for Mole Valley (Sir Paul Beresford) said, they are not to be trusted; they are not honest. Data obtained by the BBC from police forces highlights just how flawed this approach is. Between 2019 and 2021, more than 5,500 offences were committed by sex offenders of failing to comply with notification requirements: offences such as not telling the police they were living in a household with a child. The Disclosure and Barring Service found that 2,190 applicants for checks had criminal records and had supplied incorrect or missed out personal details such as past names or aliases. A total of 6,740 prosecutions began over the past three financial years for offences by sex offenders of breaches of a sexual harm prevention order or interim order. The system is broken and we must fix it. We have plenty of damning evidence as to why we should.
After being released from prison only three years into his six-year sentence for indecent assault, following a string of sexual assault convictions against children, Timothy Cuffy changed his name to Timothy Barnett. His new name allowed him to hide his criminal past, including from his new partner and three children. As Timothy Barnett, he answered the door to 13-year-old Sandy Hadfield, who knocked looking for her friend. After giving her vodka, he lured her to a quiet area of the woods, where he attempted to have sex with her before slitting her throat. Owing to his name change, his background went undetected, even after two encounters with Lincolnshire police and one encounter with social services. A system that means a convicted child sex offender is not identified, despite encounters with the police and social services, is one that is fundamentally broken and that led to the most tragic of outcomes in that case.
Sex offenders are not just changing their name post trial to hide their convictions; they are also changing their name at trial, or just before, to protect their name on their birth certificate. That has been highlighted in the high-profile case of Department for International Development worker Peter Davis, who became James Robert Harris before trial, allowing him to keep all records of his birth name clean should he decide to use it again.
This loophole gives sex offenders and abusers, many of whom rely on their ability to manipulate in order to carry out their crimes, an opportunity to hide their criminal history and pass the very checks that are meant to keep the most vulnerable safe. This loophole renders not only the DBS redundant but the domestic violence disclosure scheme, the sex offenders register and the child sex offender disclosure scheme. It seems absurd that we are discussing this 20 years on from the Bichard inquiry, which identified that the ability of serial predator Ian Huntley to change his name by deed poll to Ian Nixon, successfully severing the link with his existing police records, meant that no alarms were raised, and he was employed as a school caretaker. That this loophole still exists, allowing—indeed, enabling—serial predators to create new identities, is a scandal.
We are in this place to be legislators. We are in this place to make decisions and to ask the questions, “What if?” and “How?” We have to safeguard the most vulnerable people in society from these bad actors in all legislation. I pay tribute to everybody in the Gallery today and my hon. Friend the Member for Rotherham for her outstanding work on this issue.
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